Be sure to check the Duplication fund box and “in honor of Gray McNabb”
To know gray is to love gray. He is the happiest 5 year old, who, although nonverbal, communicates and explores the world in his own way. He is full of love and joy, but he is a prisoner in his own body. Just before his 1st birthday, he was diagnosed with mecp2 duplication syndrome, a rare, terminal genetic disease that causes severe developmental delays, feeding and respiratory difficulties. Living with mecp2 means that gray will likely never walk, talk, or live independently. And once seizures set in by around age 10, he will slowly lose his hard-earned skills, which will rob him of the joy he shares so readily and ultimately take him from us well before his time. Less than half of the children with mecp2 make it to age 25.
